The saga of our as-yet fruitless search for answers, in honor of Undiagnosed Diseases Day.
Research has shown that people who multitask suffer huge performance hits. My whole life is one long multitask. I live in a near-constant state of hypervigilance.
Something good is stripped back, and back, and back, until all that remains is a tiny, unrecognizable fragment of its barest essence. But from that tiny, barren beginning, something good may yet grow.
If you, like me, are in the desert this Lent, consider a different kind of spiritual practice for the next 40 days. Hold on to the ice cream, but work on the attitude.
Every family faces a crisis at some point, and even close friends can feel uncertain how to help. Many of these tips may sound familiar and can apply to many crisis situations, special needs or otherwise. In our experience so far, here is what really helps. 1. Offer to pray. (And then actually do it.)…… Continue reading 10 ways to love a special needs family
Lately, a troubling situation has been occurring with some regularity. Many of my friends, enduring trials and suffering of their own, explicitly downplay the seriousness of those situations in recounting them to me. They use phrases that are meant to acknowledge the profundity and difference of what we have endured this year; that acknowledgment, I…… Continue reading The girl in the bubble
Hours after my last post, which amounted to basically a temper tantrum about how hard and meaningless it is to pray for miracles, we were granted a miracle. Not THE miracle. But a miracle nonetheless.